Myelodysplastic syndrome
Disease Information
Research & Innovation
What is the latest research on MDS?
At the moment, very little is known about the initiating events that lead to MDS; therefore, limited specific therapies exist, and a hematopoietic stem cell transplantation is currently the only curative option to treat the disease.
Children’s Hospital Boston received grant funding from the National Institute of Health (NIH) to establish the first nationwide patient registry and tissue repository for Pediatric MDS and bone marrow failure disorders. This will allow researchers at Children’s and collaborating institutions to collect information and tissue samples to help us better understand this condition. Ultimately, we hope to identify new therapies for this condition, which is currently cured only with a bone marrow transplant.
To learn more about participating in the registry, please contact our research nurse, Grace Yoon at 888-5-pediMDS, or email us at mds@childrens.harvard.edu. For more information, visit our website: www.PediMDS.org.
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