Intestinal / multivisceral transplant
Treatment & Care
Once a new organ(s) has been found, things move very quickly. You will be called and asked to bring your child to the Admitting Office and then to the Transplant floor to get ready for surgery. Our team will make sure that you and your family are comfortable and informed.
Keep in mind that it is possible that you may be sent home again if one or both of the following things occur:
- The team discovers a problem with the new organ(s).
- The team finds that your child has a condition that could jeopardize his health or the transplant’s chance of success.
It’s normal to be nervous, but you can rest assured that your child is in good hands with us — his surgeon has the expertise required to work with the tiny vessels and ducts found in children.
What happens when we arrive at the hospital?
When you arrive at the hospital, members of your the transplant team will perform a physical exam and run some tests to make sure your child is ready to go to the operating room.
What happens in the operating room?
Often, the anesthesiologist will allow you to take your child into the operating room and stay with him until he’s given anesthesia and falls asleep.
Next, special catheters are inserted into your child’s blood vessels and urinary bladder. A nasogastric tube will be inserted through his nose into the stomach.
For an intestine transplant, the surgeon will remove the damaged intestine from your child's body and attaching the new intestine.
If your child is having a multivisceral transplant, the surgeon will remove the damaged organs from your child's body and attaching the new ones. Surgeons need only to connect one artery (the aorta - the body's main artery) and one vein when reattaching the organs into the patient, as opposed to all the blood vessels that would be involved with each organ separately.
How long will the transplant operation take?
Each child and each transplant is different, but an isolated intestinal transplant surgery takes at least three to four hours to complete. A multivisceral transplant operation is more complex and can take up to 10 hours to complete.
Because your child needs to be prepared for anesthesia and have all of the special catheters and tubes inserted, you may not see him for a bit longer than the actual surgery itself, but you will be regularly updated as to the progress of surgery and his condition.
What happens after surgery?
After the surgery, your child will go to the intensive care unit (ICU) to be monitored closely. After his condition is stable, your family is welcome to visit.
While your child is in the ICU, members of the transplant team will begin to educate you and your family on all aspects of caring for your child after his operation. This will include information about medications, activity, follow-up, diet and any other specific instructions.
How long will my child be in the hospital?
If all goes well, your child will stay in the hospital for at least a few weeks. The first several days are spent in the ICU, and the rest in a single room in the Solid Organ Transplant Unit. During this time:
- Your child will continue to recover, and we will be monitoring his health and adjusting his medications.
- Your child will also be seen by his Child Life specialist and social worker to provide additional support during his stay.
- Our team will teach you about the medicines and care your child will need at home.
Our goal is to have you feel comfortable and confident with all aspects of care before your child comes home. The patient care coordinator here at Children’s will work with you and your insurance company to set up the medications and any in-home nursing care that might be needed after discharge.
After the transplant, your child’s team will want to keep a close eye on him through follow-up visits to make sure that everything is going well. These visits might include:
- complete physical examination, monitoring of blood pressure, growth, etc.
- blood tests
- continued education for you and your child
- medication changes
How can I help keep my child safe after the transplant?
We understand that you will want to do everything possible to protect your child and his new organ(s), and there are some steps you can take to minimize the risk of infection.
Coping and support
We understand how disruptive and frightening a transplant can be - not only for your child, but for your whole family. From your first visit, you’ll work with a team of professionals who are committed to supporting you.
Patient education: Our nurses are on hand to walk you through the transplant process and help answer any questions you may have. They will also reach out to you by phone, continuing the care and support you received while at Children’s.
Parent to parent: Want to talk with someone whose child has had an intestinal or multivisceral transplant? We can often put you in touch with other families who can share their experience.
Faith-based support: If you and your family find yourself in need of spiritual support, we can connect you with the Children’s chaplaincy. Our program includes nearly a dozen clergy representing Episcopal, Jewish, Lutheran, Muslim, Roman Catholic, Unitarian and United Church of Christ traditions who will listen to you, pray with you and help you observe your own faith practices during your treatment experience.
Social work and mental health professionals: Our social workers and mental health clinicians have helped many other families in your situation. We can offer counseling and assistance with issues such as coping with your child’s diagnosis, stresses relating to coping with illness and dealing with financial difficulties.
On our For Patients and Families site, you can read all you need to know about:
- getting to Children’s
- navigating the hospital experience
resources that are available for your family
|Our patient-centered approach means that we want your child to not only get better, but also feel good along the way. Throughout the hospital, you¹ll find clinicians trained in therapies that can make your child feel more comfortable, learn to shift focus away from pain and enjoy some peaceful moments during what may be an anxious time. Read more about how acupuncture, guided meditation, guided imagery, massage, Reiki and therapeutic touch could help your child.|
|Back to School program|
At age 11, Ronald (R.J.) Agostinelli was diagnosed with acute lymphoblastic leukemia, a cancer of the white blood cells. He missed seven months of elementary school while having chemotherapy. Here, R.J. talks about what it was like returning to his class after a long absence.