Apert syndrome

How will my child be treated for Apert syndrome?

Your child should be evaluated by members of an experienced, interdisciplinary team. No single specialist can manage Apert syndrome and its associated problems, as treatment usually involves many areas of specialty.

Most children with Apert syndrome will require numerous operations into their adolescence and early adulthood.

Your child may need surgeries to:

• re-shape the skull
• improve the upper airway, which may be partly blocked
• correct eye problems
• address dental problems
• separate webbed fingers or toes

What's my child's long-term outlook?

The prognosis for children with Apert syndrome varies from child to child. It's important to get your child diagnosed early so that treatment can begin.