Pierre Robin sequence

How is Pierre Robin sequence treated?

Depending on the severity of the disorder, your child may require some or all of the following surgeries:

• surgery to repair a cleft palate
• special devices to protect your child's airway and aid in feeding
• surgery to improve breathing (tongue-lip adhesion)
• surgery to improve feeding

Caring for your child

• Don't put your child on his back, because his tongue may fall back into the airway.
• Feeding must be done very carefully to avoid choking and breathing liquids into the airways. Your child may need to be fed through a tube occasionally to prevent choking.

What's my child's long-term outlook?

Choking and feeding problems may go away on their own over the first few years as your child's lower jaw grows to a more normal size.

There is a significant risk of problems if your child's airways are not protected against blockage.