Vascular Anomalies Center
Additional Helpful Resources
Listed below are organizations and support groups that may be helpful to families and patients:
AboutFace USA
P.O. Box 158
South Beloit, IL 61080
888-486-1209
Fax: 702-341-5351
email: info@aboutfaceusa.org
The American Academy of Dermatology
930 N. Meacham Road
Schaumburg, IL 60173
847-330-0230
888-462-DERM (3376)
Birth Defects Research for Children, Inc.
800 Celebration Drive, Suite 225
Celebration, FL 34747
Children Anguished with Lymphatic Malformation (CALM)
1141 Prestiege
Frisco, Texas 75034
972-377-4326
email: staycalm@juno.com
CLOVES Syndrome Community
PO Box 406
West Kennebunk, ME 04094
207-281-2130
email: CLOVESsyndrome@gmail.com
Cloves Syndrome Foundation
PO Box 2571
Forest, Virginia 24551
email: info@clovessyndromefoundation.org
Faces
P.O. Box 11082
Chattanooga, TN 37401
800-3-FACES-3 (332-2373)
email: faces@mindspring.com
The Foundation for Faces of Children
258 Harvard St., #367
Brookline, MA 02446
617-355-8299
email:info@facesofchildren.org
Greater Boston Lymphedema Network
Contact: Dottie Fitzgerald
617-484-2769
email: fitzijr@msn.com
Hemangioma Hope
8400 Rohl Road
North East, PA 16428
814-898-8299
email: CDouganHH@aol.com
Hemangioma Newsline
P.O. Box 38264
Greensboro, NC 27438
336-282-9774
email: hemangnews@msn.com
K-T (Klippel-Trenaunay) Support Group
5404 Dundee Road
Edina, MN 55436
612- 925-2596
email: jvessey@uswest.net
Let's Face It
P.O. Box 29972
Bellingham, WA 98228-1972
email: letsfaceit@faceit.org
National Lymphedema Network, Inc.
Latham Square
1611 Telegraph Avenue, Suite 1111
Oakland, CA 94612-213178
800-541-3259
510-208-3200
510-208-3110 (fax)
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
203-744-0100
800-999-6673
203-746-6481 (fax)
Parents Helping Parents
3041 Olcott Street
Santa Clara, CA 95054
408-727-5775
Port Wine Stains Resource Guide
Proteus Syndrome Foundation
6235 Whetstone Drive
Colorado Springs, CO 80918
719-264-8445
email: abscit@aol.com
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
973-895-4445
973-895-4846 (fax)
email: swf@sturge-weber.com
Vascular Birthmarks Foundation
Vascular Birthmarks Foundation
P.O. Box 106
Latham, NY 12110
877-VBF-LOOK (days)
877-VBF-4646 (evenings and weekends)
email: linda@birthmark.org
VHL Family Alliance
171 Clinton Road
Brookline, MA 02445-5815
800-767-4VHL (767-4845)
617-277-5667
617-734-8223 (fax)
email: info@vhl.org
Please note: The preceding information is provided as a service to visitors to our Web site and does not represent an endorsement by the Vascular Anomalies Center or an assurance that the information in these sites is accurate and up-to-date. The most reliable source of information about vascular anomalies is a specialist associated with a major hospital.
