Clinical Program

Boston Hemophilia Center

 

BHC

About us

At the Boston Hemophilia Center, our pediatric team specializes in treating infants, children and adolescents with:

Following the initial visit, patients are seen for comprehensive bleeding disorder assessments once every year or every other year, in addition to more frequent visits as required.

Working with you and your child, our team develops an ongoing medical care plan that addresses your child’s physical, emotional and educational needs.

Services we provide

We are always available to answer health-related questions. Our ongoing management services provide patients and families with:

  • Clinic visits focused on education and individualized care with the goal of helping you effectively manage your child’s disease
     
  • Evaluation of bleeding episodes, which includes:
    • giving medical orders to home care nurses who can infuse the patient at home
    • identifying and determining when a clinic visit is necessary
    • identifying and determining when an emergency room visit or admission is required
    • addressing home infusion questions
       
  • Ongoing dialogue and teaching with families between clinic visits by phone
     
  • Answers to questions that may arise between annual visits
     
  • Genetic testing and counseling
     

Genetic testing and counseling

The Boston Hemophilia Center offers the services of a physician who is both a hematologist and a geneticist to advise families on the genetic implications of hemophilia. This can be especially important for families who are carriers of the illness when making the decision to have additional children, or as children with hemophilia or carriers reach adulthood.

For more information about our available genetic testing and counseling services, please call 617-355-4977.

How to reach us

  • Parents can contact their nurse practitioner or hematologist during the week by calling 617-355-6101.
     
  • During the week, the nurse practitioner can be paged by calling 617-355-6369 and asking for pager #1254.
  • On weekends or evenings, a hematologist can be paged by calling 617-355-6369 and asking for the hematologist on-call.

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