Boston Hemophilia Center
At the Boston Hemophilia Center, our pediatric team specializes in treating infants, children and adolescents with:
- Hemophilia A (factor VIII deficiency)
- Hemophilia B (factor IX deficiency)
- Von Willebrand disease
- Rare bleeding disorders (like Factor VII, XI or XIII deficiencies)
- Platelet function disorders
Following the initial visit, patients are seen for comprehensive bleeding disorder assessments once every year or every other year, in addition to more frequent visits as required.
Working with you and your child, our team develops an ongoing medical care plan that addresses your child’s physical, emotional and educational needs.
Services we provide
We are always available to answer health-related questions. Our ongoing management services provide patients and families with:
Clinic visits focused on education and individualized care with the goal of helping you effectively manage your child’s disease
Evaluation of bleeding episodes, which includes:
- giving medical orders to home care nurses who can infuse the patient at home
- identifying and determining when a clinic visit is necessary
- identifying and determining when an emergency room visit or admission is required
addressing home infusion questions
Ongoing dialogue and teaching with families between clinic visits by phone
Answers to questions that may arise between annual visits
Genetic testing and counseling
The Boston Hemophilia Center offers the services of a physician who is both a hematologist and a geneticist to advise families on the genetic implications of hemophilia. This can be especially important for families who are carriers of the illness when making the decision to have additional children, or as children with hemophilia or carriers reach adulthood.
For more information about our available genetic testing and counseling services, please call 617-355-4977.
How to reach us
Parents can contact their nurse practitioner or hematologist during the week by calling 617-355-6101.
- During the week, the nurse practitioner can be paged by calling 617-355-6369 and asking for pager #1254.
- On weekends or evenings, a hematologist can be paged by calling 617-355-6369 and asking for the hematologist on-call.