Clinical Program

Celiac Disease Program

The Boston Children's Hospital Celiac Support Group

 

Our Mission

The Celiac Support Group at Boston Children’s Hospital provides a community of support, education and advocacy for families with children diagnosed with celiac disease.  We are dedicated to assisting the celiac child in leading a physically and emotionally healthy, gluten-free life.

 

Welcome

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With more than 400 member families, the Celiac Support Group welcomes you to join us. Since 1992 we have provided a helping hand for families learning to manage the gluten-free lifestyle. Our membership is open to all families with celiac disease regardless of where you receive care.  We are the only celiac support group focused on children and families in the Boston area. We offer newly diagnosed families a wealth of knowledge and guidelines for raising children with celiac disease.

As a new member, our outreach committee will contact you and give your family support in the form of diet education and a welcome basket filled with gluten-free foods.

Other membership benefits include:

  • Networking with other parents
  • A quarterly newsletter covering medical updates, news about the celiac community, gluten-free recipes, educational articles and gluten-free commercial product lists
  • Membership meetings offering disease education, lifestyle management techniques, gluten-free foods and vendors
  • Parties and social events where children and their families can socialize in a safe gluten-free environment

One mother's story

“When Erica was diagnosed, my family entered a whole new world we didn’t know existed,” writes Tara Taft, whose daughter Erica was diagnosed with celiac disease at 22 months old. Read more.