Sturge-Weber Syndrome Clinic
Who we are
Sturge-Weber syndrome is a rare disorder. But at our Sturge-Weber Syndrome Clinic at Children’s Hospital Boston, we have extensive experience in treating children with this disease, and our team cares for dozens of children with the condition.
With a range of specialists, we are able to provide your child with comprehensive care. Our team includes specialists from the fields of:
In recognition of the comprehensive care our clinic provides, the Sturge-Weber Foundation has designated us as one of 10 Centers of Excellence in the United States. The Sturge-Weber Foundation sees our collaborative approach to care, in particular, as tremendously beneficial to our patients.
Answers to your questions
The "port wine stain"
The classic symptom of Sturge-Weber is a "port wine stain" on the face, although it’s also possible to have Sturge-Weber syndrome without that birthmark. And if your child does have a facial port wine stain, it doesn’t necessarily mean he will have neurological abnormalities: Only 8 percent of children with a facial port wine stain have neurological problems.
Conditions & Treatments
- Capillary malformation
- Electroencephalograms (EEG)
- Magnetic resonance imaging (MRI) with sedation
- Neurocutaneous syndromes
- Pulsed dye laser
- Sturge-Weber syndrome