Sturge-Weber Syndrome Clinic

Who we are

Sturge-Weber syndrome is a rare disorder. But at our Sturge-Weber Syndrome Clinic at Children’s Hospital Boston, we have extensive experience in treating children with this disease, and our team cares for dozens of children with the condition.

With a range of specialists, we are able to provide your child with comprehensive care. Our team includes specialists from the fields of:

In recognition of the comprehensive care our clinic provides, the Sturge-Weber Foundation has designated us as one of 10 Centers of Excellence in the United States. The Sturge-Weber Foundation sees our collaborative approach to care, in particular, as tremendously beneficial to our patients.

Answers to your questions

If your child has just been diagnosed with Sturge-Weber, you probably have a lot of questions about what complications he may have and what his treatment may involve. You may find it helpful to read these pages:

The "port wine stain"

The classic symptom of Sturge-Weber is a "port wine stain" on the face, although it’s also possible to have Sturge-Weber syndrome without that birthmark. And if your child does have a facial port wine stain, it doesn’t necessarily mean he will have neurological abnormalities: Only 8 percent of children with a facial port wine stain have neurological problems.