Sturge-Weber Syndrome Clinic

Meet our team

We understand that a diagnosis of Sturge-Weber can be overwhelming. The disorder can involve a range of complications that call on multiple specialists. Our Sturge-Weber Syndrome Clinic is a collaboration between specialists at Children’s Hospital Boston who care for all of those complications, each of whom has expertise in caring for children with Sturge-Weber.

Through this collaborative approach, we provide care for your child that is closely coordinated, and support for you to help you navigate the course of care.

Mustafa Sahin, MD, PhD, neurologist, director of the Clinic

Masanori Takeoka, MD, neurologist and epileptologist, co-director of the Clinic

Joseph Madsen, MD, neurosurgeon

John Mulliken, MD, plastic surgeon (craniofacial and vascular anomalies)

Steven J. Fishman, MD, general surgeon (vascular anomalies)

Marilyn G. Liang, MD, dermatologist

Anne Fulton, MD, ophthalmologist

Katrina Boyer, PhD, neuropsychologist

Kitty Petty, MA, MEd, LMHC, educational consultant

Jennifer McCrave, CNRN, nurse