Epilepsy Genetics Program

Participate in Ohtahara Research

We are conducting a research study to find genes that cause Ohtahara syndrome.

Who can participate?

• Children with Ohtahara syndrome and their immediate family members.
• You can participate in this study regardless of where you live.
• You do not have to travel to participate in this study.

What does participation involve?

• A telephone or in-person interview with our research staff, lasting about 1 hour.
• Review of your/your child’s medical records.
• A blood sample for genetic analysis.

Is there any cost to participate?

• There is no cost to participate.
• We will reimburse any expenses related to study participation.

What are the benefits of this research study?

• If you choose, you may learn the results of your/your child’s genetic testing.
• Helping in epilepsy research, which may improve patient care in the future.

Who can I contact for more information?

For more information about Ohtahara syndrome and our research study, click here

Call at 617-355-5254

Email us at EpilepsyGenetics@Childrens.Harvard.edu