Pulmonary Vein Stenosis Program

Pulmonary Vein Stenosis Clinical Trial:

In order for your child to qualify for the study they must have: 

•  Evidence of intraluminal pulmonary vein stenosis in > 1 vessel
• Acceptable organ function
• Evidence of myofibroblast neo-proliferation, if biopsies were obtained

After initial contact, we will need the following information in order to help determine whether or not your child qualifies for the current study:

• Current patient status
• Clinic notes
• Surgery documentation
• Echo CD's and reports
• Catheterization CD's and reports
• CT scan CD's and reports
• Recent lung scans
• Insurance information

 Please have CD's mailed to:
Attn: PVS team
Boston Children's Hospital
Cardiology—Device Group
300 Longwood Ave
Boston, MA 02115     

Please fax clinical documents to 617-919-3007 Attn: PVS team.

Feel free to contact us at pvs@cardio.chboston.org or call 617-919-3430 with any additional questions.

Please include your contact information so that we can follow up upon receipt and review of your child's information .

You can also schedule an outpatient appointment by calling 617-355-6000.