For Patients and Families
The Experience Journal
Boston Children's Hospital's Experience Journal website is a collection of stories, pictures, and personal experiences from families about what it has been like to live with their children's heart disease. It represents the "collective wisdom" of these children and their parents as well as their health care providers.
Psychiatrist-in-Chief David DeMaso, MD, and his colleagues have designed the Experience Journal as a resource for patients and their families who are looking for insights from other people who have been in situations similar to their own.
Experience Journal Topics
The Experience Journal consists of five sections with experiences relating to five different pediatric conditions, with more to come:
Family members are welcome to enter and explore the Experience Journal.