Patients and Families

For Patients and Families

Helpful resources

Since not all health information on the internet is reliable, it is important to learn to identify quality information and to always discuss information you find in the internet with your doctor or health care provider.

The following is a list of websites recommended by the Center for Families. Please email us to tell us about other websites that have been helpful to you and your family.

Alliance of Genetic Support Groups
www.geneticalliance.org/

Center for Young Women's Health
www.youngwomenshealth.org

Easter Seals
www.eastersealsma.org

Family Village: A Global Community of Disability-Related Resources
www.familyvillage.wisc.edu

Federation for Children with Special Needs
www.fcsn.org/home.htm

Healthfinder
www.healthfinder.com

KidsHealth
www.kidshealth.org

Massachusetts Department of Public Health
www.mass.gov/dph

Mass. DPH Division for Children with Special Health Care Needs
www.mass.gov/dph/fch/care/index.htm

The National Fathers Network
www.fathersnetwork.org/

National Information Center for Children and Youth with Disabilities
www.nichcy.org/index.html

National Institutes of Health
www.nih.gov

National Organization for Rare Disorders
www.rarediseases.org

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