For Patients and Families
Helpful resources
Since not all health information on the internet is reliable, it is important to learn to identify quality information and to always discuss information you find in the internet with your doctor or health care provider.
The following is a list of websites recommended by the Center for Families. Please email us to tell us about other websites that have been helpful to you and your family.
Alliance of Genetic Support Groups
www.geneticalliance.org/
Center for Young Women's Health
www.youngwomenshealth.org
Easter Seals
www.eastersealsma.org
Family Village: A Global Community of Disability-Related Resources
www.familyvillage.wisc.edu
Federation for Children with Special Needs
www.fcsn.org/home.htm
Healthfinder
www.healthfinder.com
KidsHealth
www.kidshealth.org
Massachusetts Department of Public Health
www.mass.gov/dph
Mass. DPH Division for Children with Special Health Care Needs
www.mass.gov/dph/fch/care/index.htm
The National Fathers Network
www.fathersnetwork.org/
National Information Center for Children and Youth with Disabilities
www.nichcy.org/index.html
National Institutes of Health
www.nih.gov
National Organization for Rare Disorders
www.rarediseases.org
