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Who benefits from Care for Children with Medical Complexity?

  • Children with multi-system, complex medical issues who could benefit from a whole child approach to medical care
  • Caregivers and families working to balance their child's healthcare needs and developmental goals
  • Professionals and caregivers partnering to individualize and streamline a child's healthcare planning

Who are the children with medical complexity?

Children with medical complexity typically have multiple chronic medical diagnoses or concerns. Sometimes they have a unifying diagnosis, but often they may not. Frequently children with medical complexity are dependent on technology, such as g-tubes or tracheostomies, and they may need to be hospitalized at times. They often have developmental concerns such as developmental delay, intellectual disability, or neurological issues such as seizures or difficulty walking or talking. Common diagnoses include: cerebral palsy, spina bifida, genetic syndromes, mitochondrial disease, history of prematurity, craniofacial differences such as cleft lip and palate, congenital differences ("birth defects"), muscular dystrophies, neurodegenerative diseases, hypotonia, and more.

Locations

Our clinic at the Boston main hospital location is located in the Hunnewell Building on the ground floor inside of the Children's Hospital Primary Care Center (CHPCC). Our providers see patients five days a week at this location.

We have clinics outside of Boston at three Boston Children's satellite office locations. The program at North Dartmouth focuses primarily on developmental concerns whereas other locations focus on medical complexity.

  • Waltham: 9 Hope Ave., Waltham, MA 02453
    Phone: 781-216-2100
  • Lexington: 482 Bedford St., Lexington MA 02420
    Phone: 781-216-2999
  • North Dartmouth: 500 Faunce Corner Road, Building 200, North Dartmouth, MA 02747
    Phone: 781-216-2400

Associated programs

Complex care professionals partner alongside specialty providers in several multidisciplinary clinics. Please see the following links for more details.