Patient & Family Resources | Overview
FPIES support organizations
- The International FPIES Association (I-FPIES): a nonprofit organization that provides education, support, and advocacy for individuals with FPIES and their families. The organization has resources for both caregivers and health care professionals including:
- FPIES University Video Library: A resource featuring dozens of free videos on FPIES and related topics for patients, caregivers, and health care professionals.
- FPIES Foundation: Dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.
- Kids with Food Allergies: Offers free tools, educational materials, webinars, videos, support forums, a searchable recipe database, and other resources to help families and caregivers to learn how to manage food allergies.
Resources for families with children using feeding tubes
- Oley Foundation: Offers feeding tube support and an equipment exchange program.
- Family TIES of Massachusetts: Provides information and referral services, emotional support, and training to parents of children and youth with special needs.
- Early intervention and a searchable list of programs in Massachusetts
- WIC: A nutrition program that provides healthy foods, nutrition education, breastfeeding support, and referrals to health care and other services, free of charge, to Massachusetts families who qualify.
Financial, formula coverage, and insurance resources
- Health Care for All: The Helpline is here to answer your questions about health care coverage in Massachusetts. Phone: 800-272-4232.
- Para recibir información en español, llame al 617-350-6207.
- NeedyMeds Drug Discount Card: Needy Meds lists many prescriptions assistance programs and disease-based assistance programs, including formulas.
- Abbott Nutrition Reimbursement HelpLine (Elecare, Similac Alimentum): 800-558-7677
- Massachusetts Catastrophic Illness in Children Relief Fund: A reimbursement program for expenses that are not covered by insurance or any other financial source. Eligibility is based on amount of expenses in relation to family income. Call 800-882-1435 for more information.