Listen Patient & Family Resources | Overview Several organizations and groups exist that provide support for patients with lymphatic anomalies and their families, or conduct research on these conditions. Below is a list of some of those resources: Alfie Milne Trust American Society of Pediatric Hematology/Oncology Vascular Anomalies Special Interest Group CLOVES Syndrome Community CLOVES Foundation International Society for the Study of Vascular Anomalies Kennedy’s Cause Klippel Trenaunay Support Group Lymphangiomatosis and Gorham Disease Alliance (LGDA) in the United States and Europe Lymphatic Malformation Institute (LMI) Lymphatic Education & Research Network (LE&RN) National Organization of Vascular Anomalies (NOVA)
Several organizations and groups exist that provide support for patients with lymphatic anomalies and their families, or conduct research on these conditions. Below is a list of some of those resources: Alfie Milne Trust American Society of Pediatric Hematology/Oncology Vascular Anomalies Special Interest Group CLOVES Syndrome Community CLOVES Foundation International Society for the Study of Vascular Anomalies Kennedy’s Cause Klippel Trenaunay Support Group Lymphangiomatosis and Gorham Disease Alliance (LGDA) in the United States and Europe Lymphatic Malformation Institute (LMI) Lymphatic Education & Research Network (LE&RN) National Organization of Vascular Anomalies (NOVA)
Lymphatic Anomalies Registry | Contact Us Contact the Lymphatic Anomalies Registry 617-355-5226 Email Email us
