Patient Resources | Overview
If your child has recently been diagnosed with a neuro-immune condition, this is a stressful time for your family. You are being given lots of new information and you probably have a long list of questions. All of the members of our team in the Pediatric Neuro-immunology Program are here to help.
You may also want to visit our patients resources website, which offers information on the wide array of support services available to families at Boston Children’s Hospital.
After the Diagnosis: Neuroimmunology
In this episode of After the Diagnosis presented by the Neuroscience Family Advisory Council at Boston Children's, we focused on opsoclonus-myoclonus syndrome, Hospital. Watch as Mark Gorham, MD; Kitty Petty MA, MEd, LMHC; and Jessiree Pena explain OMS treatment options and recovery.
Advocacy and Support groups
- Guthy Jackson Charitable Foundation
- National Multiple Sclerosis Society - Pediatric MS
- The Siegel Rare Neuroimmune Association (SRNA) (formerly the Transverse Myelitis Association)
- Long COVID Kids
- Hole in the Wall Gang
- OMS Life Foundation