We conduct our research at a variety of locations in the Greater Boston Area: Boston Children's Hospital at Waltham 9 Hope Avenue,  Waltham, MA 02453 Phone (Our Lab): 781-216-1199 Phone (Front Desk of Hospital): 781-216-2000 Free parking can be found in …

  The Center for the Study of Genetic Skeletal Disorders has its origins in the patients and families that Dr. Warman and his colleagues have come to know through their clinical work. Many are affected with rare, heritable, diseases that affect bones …

  Research Consent Form - Example Research Assent Form - Example Guidelines for Submitting Samples resources Resources … Resources …

  Acromesomelic dysplasia, Maroteaux type (AMDM) is an autosomal recessive skeletal disorder that affects skeletal growth. Newborns affected with AMDM generally have normal weights, lengths, and head circumferences, but may have short appearing limbs. …

  Developing a Measure of Family Experience of In-Person and Video Visits The Center of Excellence for Pediatric Quality Measurement (CEPQM) based at Boston Children’s Hospital has been funded by the Agency for Healthcare Research and Quality (AHRQ) to …

  The Child Hospital Consumer Assessment of Healthcare Providers and Systems (Child HCAHPS) Survey is a survey of parents or guardians about pediatric inpatient experience of care. Funded through the Pediatric Quality Measures Program (PQMP) by the …

  The Adolescent Assessment of Preparation for Transition (ADAPT) survey is an adolescent patient experience survey developed to measure the quality of pre-transition counseling from adolescent-focused to adult-focused care for 16- and 17-year-old …

  The Global Assessment of Pediatric Patient Safety (GAPPS) Trigger Tool is designed to capture adverse events in all pediatric inpatient settings by using triggers (i.e. “flags”) found in patient records, which will increase the specificity and time …

  The Children with Disabilities Algorithm (CWDA) consists of 669 International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9) codes determined to have a high likelihood of indicating children with disabilities (CWD). CWDA …

  Introduction to GAPPS, Session I This session’s goal is to give a basic understanding of trigger tool methodology and the GAPPS review process.     Introduction to GAPPS, Session II: Training Charts This session’s goal is to review pre-selected training …