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Patient Resources

Cystic fibrosis (CF) is a progressive, genetic disease that affects the lungs, pancreas, and other organs. People with CF produce thick, sticky mucus that affects their breathing and digestion, as well as other parts of their bodies. CF affects everyone differently and can happen to people of any race and ethnicity.

The following resources can help you learn more about CF and find support.

It is recommended that people with cystic fibrosis (CF) follow certain infection control precautions. CF affects everyone differently, and people with CF are prescribed different types of therapies by their care team. Learn about CF treatments and recommended infection control measures to support the health of people with CF. The fact sheets below were developed by the Cystic Fibrosis Foundation.

People with cystic fibrosis (CF) often have unique nutritional needs that may change throughout their lifespan. Data shows that for people with CF, pulmonary function and nutrition status are related. Learn about nutritional considerations for people with CF. The fact sheets below were developed by the Cystic Fibrosis Foundation

Learn how you can connect with others in the cystic fibrosis community who have been through a similar situation. Supports are available for patients and family members.

Learn about organizations and programs that provide education and assistance for people with cystic fibrosis to promote overall wellness.

Learn about opportunities to connect with others with similar experiences and to advocate for equitable, accessible, and supportive care for the entire cystic fibrosis community.

The Cystic Fibrosis Foundation (CFF) offers several valuable resources and programs to patients and their families. These include access to case managers to answer your questions about things like insurance coverage and financial assistance and a variety of opportunities for peer and community support.

  • Cystic Fibrosis Foundation (cff.org)
  • CF Circles: CF Circles are one-hour, small group discussions that allow you to feel heard and share your experiences with others in the CF community around identified topics.
  • CF Foundation Compass: Provides free one-on-one support and CF-specific resources to help you navigate the complexities of care, health insurance, and daily life, reducing your stress and empowering you to make informed decisions along the way.   
  • CF Peer Connect: A program that gives people with CF and their family members (ages 16 and older) the opportunity to talk one-on-one with someone who understands what they’re going through.   
  • CF Community Conferences: Designed with the CF community to provide a virtual space to make connections, share experiences, and learn from others.
  • Cystic Fibrosis Foundation’s Community Voice: Community Voice is a virtual opportunity for people with cystic fibrosis, and their family members, to share their experiences, perspectives, priorities, and knowledge to impact CF research, care, and programs.
  • CF Legal Hotline Team: Provides confidential information free of charge to individuals with CF, their family members and their CF care center team.
  • Grampion | Cystic Fibrosis Foundation: Dedicated grandparents or grandpersons who are determined to make a difference for those living with CF.

Learn about recommended accommodations for students with cystic fibrosis, types of plans that ensure students receive accommodations, and available scholarships for those who decide to pursue education beyond high school.

Información, recursos y apoyo para personas de la comunidad de fibrosis quística y sus familias. (Information, resources and support for people of the cystic fibrosis community and their families.)

Genetic therapies — including mRNA therapy, gene therapy, and gene editing — could potentially benefit everyone with CF, regardless of mutation, and one day provide a cure for the disease. Keep reading to learn how these exciting new therapies would work. The handouts below were developed by the Cystic Fibrosis Foundation.

Information and resources for people with cystic fibrosis and their families related to health insurance. Some of the fact sheets below were developed by the Cystic Fibrosis Foundation.

Learn about private foundations that provide financial assistance for people with cystic fibrosis and their families, including out-of-pocket medical expenses and financial hardship.

People with cystic fibrosis have a unique experience when it comes to sexual and reproductive health. Find resources to help answer your questions about health, puberty, pregnancy, fertility, contraception, becoming a parent, sexually transmitted infections, and more.

Health care transition is the movement from pediatric-centered care to adult-centered care with the goal of a successful transfer to adult providers in young adulthood. The care team provides education and support as responsibilities shift from the caregiver to the patient as they age with CF. Successful health care transition has been shown to result in better care and improved health for those with special health care needs, like CF.

People with cystic fibrosis (CF) may be eligible for wishes from wish-granting organizations. Learn about different wish opportunities and eligibility criteria. Various experiences and resources are available for individuals with CF of varying ages.