Assessing the Quality of Life of Patients with Systemic Autoinflammatory Disorders
What is the goal of the study? This study looks to determine how autoinflammatory disorders can impact a patient's quality of life with the goal of developing future interventions that can address these issues.
How do you participate? This study is open to patients with any type of autoinflammatory disorder, and if you join, we will ask you to complete questionnaires about your quality of life twice, roughly six months apart. These surveys will be conducted either in our rheumatology clinic after a regularly scheduled visit, or over the phone. If you have any questions, please contact our research team.
Email: RheumResearchTeam@childrens.harvard.edu
