Food Protein-Induced Enterocolitis Syndrome (FPIES) Program | Research & Innovation

We are currently enrolling participants in a research study:

Title: Longitudinal Registry of Patients with Food Protein-Induced Enterocolitis Syndrome (FPIES Registry)

Founded with the support of the International FPIES Association.

• What is the purpose of the study? Researchers at Boston Children’s Hospital are developing a registry for patients with FPIES, with the goal of advancing knowledge and developing treatments for this condition.
• Who can participate? Children and adults who have been diagnosed with FPIES can participate in this registry. 
• What do I have to do if I’m in the study? If you decide to participate in this research study, you will be asked to complete periodic online surveys, which will take about 20 minutes to complete. You will also have the opportunity to periodically provide biospecimens, including blood and stool samples.
• What are the benefits of the study? There is no financial cost. There is no direct benefit of participating. Your participation may benefit society by helping us learn more about FPIES and possible treatments. 

For more information about this study and to access the survey, please:

• Adult FPIES Registry (age ≥18 years): Visit https://redcap.link/FPIESadult
• Pediatric FPIES Registry (age <18 years): Link will be available soon

This link can also be shared — please share widely with other families!

If you have questions or would like additional information about this study, please email us at FPIES@childrens.harvard.edu.