Food Protein-Induced Enterocolitis Syndrome (FPIES) Program | Your Visit

Please share any relevant pediatrician notes, lab test results, and growth charts with us in advance of your child’s visit. Please also share any previous GI or allergy clinic notes if applicable. Records should be faxed to 617-730-6231.

Make sure to sign up for the MyChildren’s Patient Portal!

If it's your first visit, you should expect to be with us for about two to three hours. Return visits may be shorter.

Children visiting the clinic typically meet with a number of specialists, including:

• Pediatric allergist: Reviews your child’s history and conducts a physical exam to confirm the diagnosis of FPIES, as well as conduct further specialized testing if indicated. We may schedule procedures called food challenges in the future to help clarify the diagnosis of FPIES, or to assess for resolution of the allergy.
• Pediatric gastroenterologist: Reviews your child’s symptoms, growth, and feeding to help diagnose FPIES and evaluate other potential gastrointestinal problems that your child may be experiencing.  In some situations, they will order blood work, stool testing, x-rays, or other imaging tests to better understand your child’s symptoms.
• Dietitian: Assesses your child’s growth patterns and nutrition intake. The dietitian will not only review label reading and how to avoid trigger foods your child cannot have, but also discuss foods that your child can potentially include in their diet. The dietitian will review current food and beverage/formula/breastfeeding choices, and make sure your child is meeting their calorie, protein, vitamin, and mineral needs.
• Psychologist: Helps your child and your family cope with medical conditions. The psychologist can help you feel more confident managing FPIES in daily life, such as at home, with food introductions, at daycare/school, and in social situations. As your child gets older, the psychologist can help with ways to teach your child about FPIES. They can also provide support in managing stress and coping after an allergic reaction.
• Clinical coordinator: As your primary contact person, our clinical coordinator will facilitate communication with your child's treatment team, coordinate your child's care, and schedule appointments.

All of our doctors and staff work hard to see each child on schedule and to make their visit as comfortable as possible.